Welcome to The Journey to Know program!
The Journey to Know program was created to better support women and individuals with the potential to menstruate who may be experiencing symptoms of a bleeding disorder but haven’t been diagnosed yet.
This program provides a series of informational videos to help you navigate next steps and communication with healthcare providers, as well as detailing the resources available to you. We also provide automated check-ins about your progress to encourage you to continue to seek your diagnosis as well as virtual opportunities for community support. Through this program, we hope to empower you with knowledge on the basics of bleeding disorders and equip you with the proper skills to confidently advocate for your health needs.
Stay in the Know
We want to be able to support you every step of the way on your journey to a diagnosis. As part of this program, you will get ongoing information, avenues for support, and check-ins about your progress directly to your inbox or phone. You can opt for text, email, or both, to receive the regular messages. You will also be able to ask any questions you may have along your journey.
Watch & Know
By signing up for this program, we will also send you a series of videos we have developed to provide women with the knowledge and tools to navigate their journey. This short video series will help you better understand bleeding disorders, the resources available to you, and prepare you to effectively communicate with different types of healthcare providers regarding your symptoms.
Stay tuned for our Watch & Know video series.
Better Together Hour
Better Together Hour is a monthly, live virtual session where you will get the chance to connect with other women who have gone through the journey of seeking out a diagnosis, as well as other women going through this journey right alongside you. These interactive sessions will include an educational component covering a range of topics driven by you and questions about your own journey. This hour is truly to help empower you and provide you with the support and guidance you need to advocate for a diagnosis.
So, what are you waiting for? Sign up for the Journey to Know and join a nationwide community of support – because we are better together!
The Journey to Diagnosis program was created by the National Hemophilia Foundation, through support from the Centers for Disease Control and Prevention.
This project is supported by the Centers for Disease Control and Prevention of the U.S. Department of Health and Human Services (HHS) as part of a financial assistance award totaling $500,000 with 100 percent funded by CDC/HHS. The contents are those of the authors and do not necessarily represent the official views of, nor an endorsement, by CDC/HHS, or the U.S. Government.