What is the Journey to Know Program?

Discover the Journey to Know Program!

Have you been experiencing symptoms of a bleeding disorder but haven’t been diagnosed yet? The Journey to Know program is your key to kickstart your path to understanding and empowerment. Your symptoms deserve answers, and we're here to guide you.

Journey to Know Process

Dive into our info-packed videos to learn how to talk to healthcare providers and navigate your next steps forward. Receive weekly emails or text messages that guide you along your journey. Joining Journey to Know means you can:

  • Understand the symptoms of a bleeding disorder
  • Gain confidence in discussing your health with your providers
  • Overcome barriers to getting to a healthcare provider
  • Navigate the path to a diagnosis

After just three months you will have all the resources, knowledge, and skills you need to champion your health.

Stay in the Know

We want to be able to support you every step of the way on your journey to a diagnosis. As part of this program, you will get relevant information, resources, and check-ins about your progress directly to your inbox or phone. You can opt for text messages, email messages, or both. You will also be able to ask any questions you may have along your journey.

Journey to Know Messaging

Watch & Know

Unlock new knowledge and skills by watching the Journey to Know video series. Gain the tools to confidently navigate bleeding disorders, access resources, and communicate effectively with healthcare providers.

Watch our Watch & Know video series.

Watch and Know Video Series Thumbnail


So, what are you waiting for? Sign up for the Journey to Know and join a nationwide community of support – because we are better together!


The Journey to Know program was created by the National Hemophilia Foundation, through support from the Centers for Disease Control and Prevention.

This program is supported by Cooperative Agreement Number (NU01DD000006), funded by the Centers for Disease Control and Prevention. Its contents are solely the responsibility of the authors and do not necessarily represent the official views of the Centers for Disease Control and Prevention or the Department of Health and Human Services.


Not quite ready to join? Explore bleeding disorders and what you need to know by browsing the Better You Know website.