What is the Journey to Know Program?

Welcome to The Journey to Know program!

The Journey to Know program was created to better support women and individuals with the potential to menstruate who may be experiencing symptoms of a bleeding disorder but haven’t been diagnosed yet.

This program provides a series of informational videos to help you navigate next steps and communication with healthcare providers, as well as detailing the resources available to you. We also provide automated check-ins about your progress to encourage you to continue to seek your diagnosis. Through this program, we hope to empower you with knowledge on the basics of bleeding disorders and equip you with the proper skills to confidently advocate for your health needs.

To learn more about what bleeding disorders are and what a diagnosis can mean for you, browse through the Better You Know website.

Stay in the Know

We want to be able to support you every step of the way on your journey to a diagnosis. As part of this program, you will get ongoing information, avenues for support, and check-ins about your progress directly to your inbox or phone. You can opt for text, email, or both, to receive the regular messages. You will also be able to ask any questions you may have along your journey.

Watch & Know

By signing up for this program, we will also send you a series of videos we have developed to provide women with the knowledge and tools to navigate their journey. This short video series will help you better understand bleeding disorders, the resources available to you, and prepare you to effectively communicate with different types of healthcare providers regarding your symptoms.

Watch our Watch & Know video series.

So, what are you waiting for? Sign up for the Journey to Know and join a nationwide community of support – because we are better together!


The Journey to Know program was created by the National Hemophilia Foundation, through support from the Centers for Disease Control and Prevention.

This program is supported by Cooperative Agreement Number (NU01DD000006), funded by the Centers for Disease Control and Prevention. Its contents are solely the responsibility of the authors and do not necessarily represent the official views of the Centers for Disease Control and Prevention or the Department of Health and Human Services.